Please scroll down for Latest Updates
Why am I fundraising?
I am Prachi Y. Rajwade. My 7-month-old son Parth is fighting with chronic liver disease called Liver Cirrhosis caused due to biliary atresia. He has undergone a surgery (Kasai Procedure) at the age of 2.5 months, but unfortunately surgery did not help and was termed a failure. Parth is a young fighter with a strong will power but his liver now needs a transplant as early as possible.
About Parth
Parth was born in 8th month of pregnancy. Even being a pre-mature, he seemed to be healthy at the time of birth with 2.9 kg of weight. One month later, we observed that his eyes were yellow and were showing symptoms of jaundice. Soon he was diagnosed with rare liver condition called biliary atresia. Doctors then suggested a surgery called Kasai procedure. But unfortunately, four months after surgery doctors observed that the operation did not help, so Parth needs to undergo liver transplant.
He is at home in Dombivli and having treatment in Global Hospitals, Mumbai (Liver OPD). His UHID No. is: 105085014.
Surgery will be Held in Chennai and his Global Hospitals, Chennai UHID no. is: 1020205111
What is Biliary Atresia?
Biliary atresia, also known as extrahepatic ductopenia, progressive obliterative cholangiopathy is a childhood disease of the liver in which one or more bile ducts are abnormally narrow, blocked, or absent. It can be congenital or acquired. As a birth defect in newborn infants, it has an incidence of one in 10,000–15,000 live births in the United States, and a prevalence of one in 16,700 in the British Isles. The causes of biliary atresia are not well understood. The only effective treatments are surgeries such as the Kasai procedure and liver transplantation. (Source: Wikipedia)
What do I plan to do with the funds?
Parth's Hospital (Global Hospitals, Parel,Mumbai) has provided the following breakdown for the funds:
Post Liver Transplant he will need lifelong immune suppression and follow up with Global Hospital Mumbai Team. His Medical expenses in first three months will be 30,000/month, then 15,000/month till one year and later 10,000/month in 2nd year.
Parth has been bravely battling his life-threatening liver ailment. We now need your support. The target has been set to cover, transplant and post-transplant care for 2 years including medications. A small contribution can go a long way to help Master Parth to survive and have a healthy life.
--------------------------------------------------------------------------
# UPDATE 01 (3rd December 2016) #
--------------------------------------------------------------------------
Hi all,
--------------------------------------------------------------------------
# UPDATE 02 (10th December 2016) #
--------------------------------------------------------------------------
Hello all,
An important update to share
We have traveled to Chennai this weeks 7th & 8th to meet surgeon, Prof. Dr. Mohammed Rela of Global Hospitals, Chennai. We have enrolled Parth's name for surgery in Global Hospitals, Chennai. His Patient ID : UHID - 1020205111
About Prof. Dr. Mohammed Rela: Dr. Rela is Worlds top Liver Transplant surgeons who has Guinness World Record for Performing liver transplantation on 5 day old baby. He so far performed more than 3000 liver transplant surgeries
This was the first time when Parth met his surgeon. Dr. Rela said that its better to have surgery within 2 months as Parth is suffering with liver cirrhosis. He also suggested to complete his immunization before surgery as its not possible to give him live vaccines after transplant. Completing immunization will also ensures healthy recovery after transplant.
Parths health is stable now and we are preparing him for surgery with proper diet and medicines as per doctors advice.
Being a donor, Parth's father also need to undergo few screenings and tests before surgery, which will be schedule in mid of December. The tests include CT Scan, MRI, various blood tests etc. will be performed to ensure his safety during and after transplant.
We have met transplant co-coordinator Mr. Shivakumar who will guide us thru-out the process. He had given us the list of documents to be prepared and forms to be filled up in order to get the permission from State Level Human Organ Transplant Authorization Committee for liver transplant.
Last but not the least, we are thankful to all of you for praying & supporting Parth.
We are still short with funds, so requesting you all to spread the words to raise the funds as soon as possible.
Thanks once again
Regards,
Prachi Y. Rajwade
--------------------------------------------------------------------------
--------------------------------------------------------------------------
# UPDATE 03 (17th December 2016) #
--------------------------------------------------------------------------
--------------------------------------------------------------------------
--------------------------------------------------------------------------
# UPDATE 04 (06th February 2017) #
--------------------------------------------------------------------------
Hello All the Supporters,
Our Pre Liver Transplant Workup in Global Hospitals, Mumbai has completed and have received fitness certificate for both donor and recipient. We are having follow-up with Doctors and Transplant Co-ordinator in Global Health City, Chennai to Get the surgery date. We will get the date soon.
Thanks once again for your help, support and prayers for Parth and our family.
Regards,
Prachi Y. Rajwade
Hello All,
Parth is doing well.
As said earlier Parth’s father visited Chennai this week for finalizing documentation, accommodation arrangements and date of surgery.
Our Liver Transplant surgery procedures are almost completed. Transplant coordinator from Global Hospitals, Chennai have suggested few changes in documentation, also few tests to be done just before surgery. We will complete the documentation by this week and as suggested our transplant coordinator, we will be travelling to Chennai by 25th of February for surgery.
Things are bit delayed as Parth was not keeping well and few work up test cannot be perform while having any kind of infection.
I will keep posting the updates timely. Thanks once again for your help, support and prayers for Parth and our family.
Regards,
Prachi Y. Rajwade.
--------------------------------------------------------------------------
# UPDATE 05 (12th February 2017) #
--------------------------------------------------------------------------
Parth is doing well.
As said earlier Parth’s father visited Chennai this week for finalizing documentation, accommodation arrangements and date of surgery.
Our Liver Transplant surgery procedures are almost completed. Transplant coordinator from Global Hospitals, Chennai have suggested few changes in documentation, also few tests to be done just before surgery. We will complete the documentation by this week and as suggested our transplant coordinator, we will be travelling to Chennai by 25th of February for surgery.
Things are bit delayed as Parth was not keeping well and few work up test cannot be perform while having any kind of infection.
I will keep posting the updates timely. Thanks once again for your help, support and prayers for Parth and our family.
Regards,
Prachi Y. Rajwade.
